-
- Living with Morgellon's Syndrome
- By: DOREEN MARTEL
Life for those suffering from Morgellon’s Syndrome (a.k.a. Morgellons or Morgellon’s Disease) can be painful. This pain can increase from year to year, especially since no known cause or cure has been found at this time. Until research determines the source of the problem (and until they establish that there actually IS a problem to begin with), Morgellons patients are likely to continue their suffering without relief.Many of the symptoms associated with Morgellons get progressively worse unless an effective treatment can be found. These treatments vary by patients, as does the level of symptom relief. Some treatments work well for some patients, while the same treatments provide little or no relief for another patient (even if the symptoms are the same, the patient is the same age, and other similar factors are present). Others do not work at all for one patient, but seem to offer effective relief for another patient. The cause of this is not known, but there are absolutely no cures for Morgellons to date, only relief. If patients discontinue medications, the symptoms return, and grow progressively worse.
Skin lesions, rashes, and joint pain (similar to that of fibromyalgia patients) are the most common complaint of Morgellons patients. Although doctors point in a myriad of different directions, many Morgellons patients remain adamant in their certainty that the malady is attributable to Morgellons and not any other (however similar) illness and refuse any treatment relating to the similar disease or sickness.
However, there is very little evidence suggesting that Morgellons is anything other than a purely psychosomatic disease in and of itself. There are many maladies that contain one or more Morgellons symptoms, but, due to the widespread conspiracy theories that are associated with diseases, patients refuse to accept that what they have is not a new, undocumented illness but a simply explained one with easy-to-treat symptoms. What is actually quite likely an allergic reaction becomes a life-threatening bio-terrorism effort. It is quite sad on both sides of the spectrum: sad for patients who suffer needlessly if Morgellons is not real and sad for the same patients if it is real and doctors are not seeking a more effective remedy.
The FDA, AMA, and Centers for Disease Control have neither confirmed nor effectually denied the existence of Morgellons. They have admitted that there are symptoms in some patients that cannot be effectively treated or explained. They have not provided further explanation, however, for why these symptoms are not being more fully researched and taken more seriously. Those suffering from Morgellons often face pain and ridicule not associated with their illness by knowing that they are laughed at by most of the medical world.
Morgellons patients must face an awful road of pain and emotional distress that many sufferers of similarly debilitating diseases do not have to handle. Morgellons is both a source of head scratching and pooh-poohing. Until research can locate a reason why the lesions appear, why they take so long to heal, why they continue to develop, why the granules pop up, and more, patients will continue to self-diagnose Morgellons and refuse treatment for anything else. Until doctors can effectively disprove the theory of Morgellons, they will continue to see patients for the disease, and many will continue to be frustrated when patients dismiss the idea of allergies, scabies, or especially delusional parasitosis.
Although very few subscribe to the dozens of theories surrounding Morgellons, fewer still believe that the lesions or granules come from a host of wildly fantastic sources. There are literally hundreds of websites that attribute the granules or fibers to bio-terrorism efforts, alien technology, spy or germ warfare, and similar sources. Those who claim Morgellons offer “proof” that their lesions are caused by something very different from the allergies they mimic, although much of this proof gets somehow lost in the proving.
Life with Morgellons is difficult for a host of reasons, apparently. Ridicule, pain, ongoing and progressively worsening symptoms (needless or not), paralyzing fear, and emotional distress are common and cause many problems themselves. Morgellons patients already suffer tremendously from bipolar-like symptoms and severe depression. Those that refuse treatment for these disorders often become worse and the disorders can lead to more pain, emotional and physical, and many patients end up committing suicide. Research is needed (with the help of the MRF) to determine the cause and treatment of Morgellons, so that it can become outdated.
To learn more visit Moregllons Guide